The beauty tutorials have stopped, but for the father of Talia Castellano, the work has just begun.
Marc Winthrop, who lost his 13-year-old daughter to two separate types of cancer last month, has taken his grief at losing Talia and poured it into carrying out her dream of one day finding a cure for pediatric forms of cancer.
Winthrop, who lives in New York with his wife Susan, told the Daily News that one of his biggest goals is to get significant money to scientists conducting cancer research.
"The biggest thing I've done is pulled together parent groups and made very significant grants to Memorial Sloane-Kettering for Neuroblastoma," he said.
The dedicated father is part of a group called Band of Parents, a volunteer-based organization with the goal of funding new therapies for the fairly rare type of cancer.
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Now that Talia's gone, Winthrop says one of his own pet projects will be getting world-class care for all children, regardless of their parents' insurance statuses or income.
"With Neuroblastoma, if you're not at a major cancer center and something goes wrong, your survival rate really drops dramatically, and that's not fair to kids."
Their current research grant is $2 million.
Winthrop told the News that Talia's last weeks were difficult, not only for the beauty blogger, but for the entire family as well. It was important for the smiling teen to go in peace, surrounded by family.
"Her death was very hard and very sad," Winthrop said. He was in the hospital room when the brave teenager drew her last breath.
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He described her as looking "calm and relaxed" in her final minutes.
The family also held a private ceremony for her at a New York City synagogue last week.
His family sat Shiva for Talia after her passing, watching her many YouTube tutorials and looking at pictures of the beautiful bald girl with the bright eyes.
Still, the success holds little meaning for Winthrop. "She made her mark, and she made a difference in this world, but it doesn't change the fact that she's gone.
"I'd give it all back to have her back again."
To donate to Talia's memory, please visit Band of Parents.
bstebner@nydailynews.com
Source: http://feeds.nydailynews.com/~r/NydnRss/~3/Y1Apih5p4KE/story01.htm
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